An autoimmune acute encephalitis caused by antibodies against the glutamate NMDA receptor. It usually affects females and in the majority of cases it is associated with the presence of a tumor, most c...
Comprehensive, easy-to-understand information about this condition
How we create this content →Documentation for anti-NMDA receptor encephalitis is limited due to its relatively recent recognition as a distinct clinical entity and the rarity of the condition. The complexities of autoimmune responses and the overlap with other neurological disorders contribute to the challenges in systematic study. As research continues, more information is expected to emerge, but currently, the understanding of this condition is still evolving.
To navigate your care effectively, seek a neurologist with expertise in autoimmune encephalitis or neuroimmunology. Consider participating in clinical trials, which may provide access to cutting-edge treatments and contribute to research. The National Organization for Rare Disorders (NORD) offers resources that may be helpful; you can visit their website at rarediseases.org. While no patient organizations are currently identified for this condition, staying informed about ongoing research and potential registries can be beneficial.
There is ongoing research into potential treatments for anti-NMDA receptor encephalitis, including a humanized one-armed monoclonal antibody that has received orphan drug designation. Additionally, there are currently 10 active clinical trials investigating various aspects of the condition. For more information on available trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=anti-NMDA%20receptor%20encephalitis.
Actionable guidance for navigating care for anti-NMDA receptor encephalitis
To navigate your care effectively, seek a neurologist with expertise in autoimmune encephalitis or neuroimmunology. Consider participating in clinical trials, which may provide access to cutting-edge treatments and contribute to research. The National Organization for Rare Disorders (NORD) offers resources that may be helpful; you can visit their website at rarediseases.org. While no patient organizations are currently identified for this condition, staying informed about ongoing research and potential registries can be beneficial.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Documentation for anti-NMDA receptor encephalitis is limited due to its relatively recent recognition as a distinct clinical entity and the rarity of the condition. The complexities of autoimmune responses and the overlap with other neurological disorders contribute to the challenges in systematic study. As research continues, more information is expected to emerge, but currently, the understanding of this condition is still evolving.
To navigate your care effectively, seek a neurologist with expertise in autoimmune encephalitis or neuroimmunology. Consider participating in clinical trials, which may provide access to cutting-edge treatments and contribute to research. The National Organization for Rare Disorders (NORD) offers resources that may be helpful; you can visit their website at rarediseases.org. While no patient organizations are currently identified for this condition, staying informed about ongoing research and potential registries can be beneficial.
There is ongoing research into potential treatments for anti-NMDA receptor encephalitis, including a humanized one-armed monoclonal antibody that has received orphan drug designation. Additionally, there are currently 10 active clinical trials investigating various aspects of the condition. For more information on available trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=anti-NMDA%20receptor%20encephalitis.
Actionable guidance for navigating care for anti-NMDA receptor encephalitis
To navigate your care effectively, seek a neurologist with expertise in autoimmune encephalitis or neuroimmunology. Consider participating in clinical trials, which may provide access to cutting-edge treatments and contribute to research. The National Organization for Rare Disorders (NORD) offers resources that may be helpful; you can visit their website at rarediseases.org. While no patient organizations are currently identified for this condition, staying informed about ongoing research and potential registries can be beneficial.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Documentation for anti-NMDA receptor encephalitis is limited due to its relatively recent recognition as a distinct clinical entity and the rarity of the condition. The complexities of autoimmune responses and the overlap with other neurological disorders contribute to the challenges in systematic study. As research continues, more information is expected to emerge, but currently, the understanding of this condition is still evolving.
To navigate your care effectively, seek a neurologist with expertise in autoimmune encephalitis or neuroimmunology. Consider participating in clinical trials, which may provide access to cutting-edge treatments and contribute to research. The National Organization for Rare Disorders (NORD) offers resources that may be helpful; you can visit their website at rarediseases.org. While no patient organizations are currently identified for this condition, staying informed about ongoing research and potential registries can be beneficial.
There is ongoing research into potential treatments for anti-NMDA receptor encephalitis, including a humanized one-armed monoclonal antibody that has received orphan drug designation. Additionally, there are currently 10 active clinical trials investigating various aspects of the condition. For more information on available trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=anti-NMDA%20receptor%20encephalitis.
Actionable guidance for navigating care for anti-NMDA receptor encephalitis
To navigate your care effectively, seek a neurologist with expertise in autoimmune encephalitis or neuroimmunology. Consider participating in clinical trials, which may provide access to cutting-edge treatments and contribute to research. The National Organization for Rare Disorders (NORD) offers resources that may be helpful; you can visit their website at rarediseases.org. While no patient organizations are currently identified for this condition, staying informed about ongoing research and potential registries can be beneficial.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 31, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.
Organizations with orphan designations or approved therapies for this disease