Rare disease news, mapped to the diseases behind the headlines. AI-classified across pipeline, policy, funding, science, and community.
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A case report details a patient with Rasmussen's encephalitis who experienced a decade of refractory epilepsy and hemispheric atrophy. This study contributes to the understanding of the disease's progression and potential treatment challenges.
Regla María Garci Espejo shares her personal story of growing up with a sister affected by West syndrome, a severe early-onset epilepsy. This narrative highlights the challenges faced by families dealing with rare diseases and aims to raise awareness.
A CDC study reveals that approximately 1% of adults have active epilepsy, with over one-third not receiving adequate treatment. This highlights the ongoing need for improved awareness and access to care for individuals with epilepsy.
CDC releases new data on epilepsy, highlighting demographic trends in adoption among men and women aged 18-44. The report aims to raise awareness about epilepsy and its impact on family dynamics.
The CDC reports that smoking rates are highest among individuals with disabilities, highlighting significant health disparities. This finding underscores the need for targeted public health initiatives to address these inequalities.
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