Rare disease news, mapped to the diseases behind the headlines. AI-classified across pipeline, policy, funding, science, and community.
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Michael Fletcher, a passionate advocate for quit-smoking efforts, has passed away
EURORDIS has opened applications for the Open Academy School 2026, aimed at training and connecting individuals in the rare disease community. This initiative seeks to enhance leadership and advocacy skills among participants.
Sixteen people in ten states have gotten sick from the same strain of Salmonella.
95 people from 14 states have gotten sick from the same strain of Salmonella.
Global Genes releases a Quick Guide to Genetic Diagnosis aimed at empowering advocates to address challenges in genetic testing and diagnosis. This resource is designed to enhance understanding and advocacy efforts in the rare disease community.
HHS Secretary Robert F. Kennedy, Jr. visited CDC headquarters in response to tragic gunfire attack
CDC launches Free Mind campaign providing teens with resources about substance use and mental health
Christine Brader, a champion of anti-smoking efforts, has passed away at 62
Susan Monarez, Ph.D., was sworn in today as Director of the CDC
Global Genes releases a Quick Guide to assist advocates in obtaining state proclamations for Rare Disease Awareness. This resource aims to empower local efforts in raising awareness and addressing challenges faced by the rare disease community.
11 people from 10 states sick with the same strain of Salmonella linked to frozen sprouted beans
EURORDIS highlights findings from the Rare Barometer survey, emphasizing the recognition of disabilities faced by individuals with rare diseases. This initiative aims to raise awareness and improve understanding of the challenges these patients encounter.
The CDC Advisory Committee on Immunization Practices (ACIP) held a meeting on June 25-26, 2025.
The CDC Advisory Committee on Immunization Practices (ACIP) will hold a meeting on June 25-26, 2025
17 people have gotten sick from the same strain of Listeria linked to fettuccine chicken alfredo
Four people have gotten sick with the same strand of Salmonella linked to pistachio cream
A CDC investigation notice regarding a multistate outbreak of Salmonella infections has been posted
A CDC food safety alert regarding a multistate outbreak of Salmonella infections has been posted
The data from CDC's National Vital Statistics System shows a 27% decrease in drug overdose deaths
A CDC investigation notice regarding a multistate outbreak of Salmonella infections has been posted
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