Rare disease news, mapped to the diseases behind the headlines. AI-classified across pipeline, policy, funding, science, and community.
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Media Alert - A CDC Food Safety Alert update regarding a multistate outbreak of Listeria monocytogenes infections has been posted at https://www.cdc.gov/listeria/outbreaks/delimeats-7-24/index.html.
New CDC data released today highlight improvements in mental health among some United States teens, including decreases in the percentage of students feeling persistently sad or hopeless.
A CDC Investigation Notice update regarding a multistate outbreak of Listeria monocytogenes infections has been posted at https://www.cdc.gov/listeria/outbreaks/delimeats-7-24/index.html.
Media Statement - Three additional human cases of highly pathogenic avian influenza (HPAI) A(H5) ("H5 bird flu") virus infection have been confirmed by the Centers for Disease Control and Prevention (CDC) in association with a second poultry farm in Northeast Colorado/Weld County.
CDC has clarified and simplified the process for bringing dogs into the United States from rabies-free and low risk dog rabies countries. CDC aims to protect the health of U.S. communities and animals and prevent the re-introduction of dog rabies to the United States.
CDC Investigating Multistate Outbreak of Listeria Infections Linked to Meats Sliced at Delis
Today CDC released the annual update to the Disability and Health Data System (DHDS), providing quick and easy online access to state-level health data on adults with disabilities.
Four human cases of highly pathogenic avian influenza (HPAI) A(H5) ("H5 bird flu") virus infection in the state of Colorado have been confirmed by the Centers for Disease Control and Prevention (CDC).
The state of Colorado has announced that three people have tested presumptive positive for highly pathogenic avian influenza (HPAI) A(H5) ("H5 bird flu") virus infection.
A human case of highly pathogenic avian influenza (HPAI) A(H5) ("H5 bird flu") virus infection in the United States has been identified in the state of Colorado.
CDC's Advisory Committee on Immunization Practices (ACIP) met June 26 - 28 to discuss data on multiple vaccines. The agenda and presentations are online.
Today the Centers for Disease Control and Prevention (CDC) launched its updated Public Health Data Strategy for 2024-2025 and a companion 2023 Lookback Report.
Today the Centers for Disease Control and Prevention (CDC) launched its updated Public Health Data Strategy for 2024-2025 and a companion 2023 Lookback Report.
The Mighty provides guidance for adults pursuing a rare disease diagnosis, emphasizing the importance of advocacy and support networks. This resource aims to empower individuals navigating the complexities of rare disease identification.
A personal story highlights how a diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) motivated the author to engage in advocacy efforts. The narrative emphasizes the importance of community support and awareness for rare diseases.
CDC is releasing the latest provisional estimates for suicide deaths in the United States in 2022. The provisional estimates released today indicate that suicide deaths further increased in 2022.
A personal story highlights the resilience of individuals diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) as they strive to pursue their dreams despite the challenges posed by the disease. This narrative emphasizes the importance of community support and advocacy for rare disease awareness.
AADC deficiency families share their experiences and strategies for support, highlighting the importance of community and advocacy. This personal narrative emphasizes the need for awareness and resources for this rare condition.
A new article outlines essential steps for parents after their child is diagnosed with Alagille Syndrome, emphasizing the importance of education, support networks, and medical management. This guidance aims to empower families navigating this rare disease.
The Mighty provides guidance for families preparing for medical appointments related to Alagille Syndrome. This resource aims to empower patients and caregivers with strategies to effectively communicate their needs and concerns.
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