To mobilize resources, facilitate connections, promote unity, and advocate for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.

The Alagille Syndrome Alliance (ALGSA) is an international nonprofit started in 1993, representing the ALGS community. With 2 staff members and 9 board members spanning globally from London, India, Canada, and the US, they provide advocacy and support for people affected by Alagille syndrome.