Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
BostonSight is dedicated to restoring sight and improving the quality of life for patients suffering from cornea diseases and dry eyes through innovative treatments and educational programs.
RDCP:PAG0000290
The organization supports research and awareness for mental health disorders, including schizophrenia and related conditions.
The Brain Injury Association of America (BIAA) supports individuals affected by brain injuries through advocacy, education, and resources, while also providing professional training and certification programs.
The Brain Tumour Foundation of Canada supports individuals affected by brain tumours through education, resources, and funding for research.
BANA UK (British Acoustic Neuroma Association) provides support and information for individuals affected by Acoustic Neuroma, including resources for patients and their families.
The British Liver Trust focuses on improving liver health and supporting those affected by liver conditions, including liver cancer.
The British Polio Fellowship is dedicated to supporting and empowering people in the UK living with the late effects of polio and post-polio syndrome (PPS) by providing information, welfare, and support services.
The British Porphyria Association is a national charity that supports and educates individuals affected by porphyria, aiming to improve their lives through information, community, and advocacy.
RDCP:PAG0000035
The CACNA1A Foundation is dedicated to supporting individuals and families affected by CACNA1A variants, funding research to find treatment options and a cure for related neurodegenerative diseases.
The CADASIL Eradication Project supports genomic research aimed at finding treatments for CADASIL and related small vessel diseases.
The CAMK2 Therapeutics Network is a family-led initiative focused on improving the lives of individuals affected by CAMK2 gene-related disorders through education, research, and access to expert care.
The CAPRIN1 Foundation supports families affected by CAPRIN1-related disorders through research, education, and community connection.
The CARES Foundation supports individuals and families affected by Congenital Adrenal Hyperplasia (CAH) through education, advocacy, and resources.
CASK Warriors Foundation is dedicated to accelerating research and providing gene therapy for children diagnosed with the ultra-rare CASK Gene Disorder, focusing on improving outcomes and finding a cure.
RDCP:PAG0000039
CDH Research International is dedicated to stopping Congenital Diaphragmatic Hernia (CDH) by raising awareness, supporting patient families, and funding research for better treatments.
The CGD Society provides support, information, and advocacy for individuals and families affected by Chronic Granulomatous Disorder, while also funding a Clinical Nurse Specialist and raising awareness of the condition.
RDCP:PAG0000040
The CHAMP1 Research Foundation advocates for children affected by the rare genetic disorder CHAMP1, aiming to accelerate scientific research and discover treatments.
The CHARGE Family Support Group is a UK charity that provides support and resources for individuals and families affected by CHARGE Syndrome, aiming to create a positive network for sharing experiences and information.
CHES Foundation is a national non-profit organization focused on providing education and support for individuals with rare bleeding disorders, including Inhibitors and women affected by these conditions.
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