Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
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CID - Central Institute for the Deaf supports children who are deaf and hard of hearing by providing education and resources to help them learn to listen, talk, and succeed.
CJD Aware is an online information center for Creutzfeldt-Jakob Disease (CJD).
RDCP:PAG0000047
The CMT Research Foundation is dedicated to accelerating research and funding for treatments and cures for Charcot-Marie-Tooth disease, which affects millions worldwide.
CMTC Alliance focuses on supporting individuals with vascular anomalies and birthmarks, providing educational resources and organizing events for families and patients.
RDCP:PAG0000048
CMTC-OVM is a global non-profit community dedicated to improving the quality of life for individuals with rare vascular malformations, such as CMTC and Klippel-Trenaunay, and supports scientific research in this field.
RDCP:PAG0000051
The Consortium for Outcome Measures and Biomarkers for Neurodevelopmental Disorders is a non-profit organization focused on accelerating clinical treatments for rare genetic neurological disorders.
RDCP:PAG0000054
CTNNB1 Connect & Cure is dedicated to finding treatment options and a cure for CTNNB1 Syndrome, a rare genetic disorder, while providing support and resources for affected families.
RDCP:PAG0000055
The CTX Alliance is dedicated to providing education, support, and advocacy for patients with Cerebrotendinous Xanthomatosis (CTX), their families, and healthcare professionals.
CURE Epilepsy is a nonprofit organization dedicated to funding research aimed at finding a cure for epilepsy and supporting initiatives related to various forms of the disease.
CURE RAGHAV is a patient advocacy organization focused on finding a cure for GPX4 disease, a rare genetic condition affecting children, by raising funds and collaborating with researchers and doctors.
RDCP:PAG0000261
Camp Twin Lakes provides camp experiences for children living with serious illnesses, disabilities, and life challenges, helping them to discover new strengths and feel understood.
CURED is a not-for-profit foundation dedicated to supporting individuals suffering from Eosinophilic Gastrointestinal Diseases (EGID), including eosinophilic esophagitis, gastritis, and colitis, through research funding, advocacy, and education.
The Campbell Burns Metabolic Trust is a charity that supports families of children aged ten and under who have been diagnosed with a metabolic disorder.
The Canadian Addison Society provides advocacy, education, and support for individuals living with Addison's disease and other forms of adrenal insufficiency.
The Angelman Syndrome Foundation Canada provides support and resources for families affected by Angelman syndrome through various initiatives, including a Family Fund and Angelman Clinics.
Inclusion Canada is the national federation advocating for people with intellectual disabilities and their families, providing support for disability benefits and promoting inclusion and human rights.
The Canadian Association of Pompe supports Pompe disease patients and their families in Canada through education, support, and community engagement.
Celiac Canada is a national charity dedicated to supporting individuals in Canada living with celiac disease and gluten-related disorders through advocacy, education, and community engagement.
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