Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
Cardiomyopathy UK is a patient advocacy organization that provides support, information, and resources for individuals affected by various types of cardiomyopathy, a group of heart muscle diseases.
The Carroll Center for the Blind provides a range of services for individuals who are blind or visually impaired, including rehabilitation programs for children, teens, adults, and seniors, as well as assistive technology and consulting services.
RDCP:PAG0000038
The Castleman Disease Collaborative Network (CDCN) is dedicated to accelerating research and treatment for Castleman disease, supporting patients on their journeys, and revolutionizing biomedical research for countless other diseases.
CESI onlus is a non-profit organization dedicated to supporting individuals affected by Cat Eye Syndrome and related malformations through patient help, family support, and awareness initiatives.
Cauda Equina Foundation, Inc. serves to improve the quality of life and care for individuals living with cauda equina syndrome and associated disorders.
The Celiac Disease Foundation advocates for individuals affected by celiac disease, providing resources for education, research, and support to improve diagnosis and treatment.
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The Center for Chronic Illness promotes well-being and decreases isolation for those impacted by chronic illness through support and education, offering support groups and health education events.
CISCRP is a non-profit organization dedicated to engaging the public and patients as partners in the clinical research process, providing resources and services to enhance understanding and participation in clinical trials.
CIBMTR is dedicated to improving survival, treatment, and quality of life for patients through transformative research in cellular therapy, particularly in hematopoietic cell transplantation.
RDCP:PAG0000041
The Charcot-Marie-Tooth Association supports individuals affected by Charcot-Marie-Tooth disease (CMT) through research acceleration, patient empowerment, and community resources.
The Giving Back Fund is a national non-profit organization that facilitates charitable giving by professional athletes, celebrities, and high-net-worth individuals, providing philanthropic consulting and management services.
Chelsea's Hope Lafora Children Research Fund is dedicated to improving the lives of those affected by Lafora disease through awareness, family connection, and funding research for treatments.
CC4C is a nonprofit organization dedicated to improving the quality of life for Texas children living with rare and undiagnosed medical conditions by providing financial assistance, wellness programs, and community support.
Child Neurology Foundation supports children and families living with neurologic conditions by providing information, education, and one-on-one support.
RDCP:PAG0000269
Childhood Cancer Canada supports children with cancer and their families through compassionate care programs, research investment, and public awareness initiatives.
The Childhood Dementia Initiative focuses on raising awareness and transforming research, care, and policy responses for children suffering from over 100 genetic conditions that cause childhood dementia.
The Childhood Eye Cancer Trust is the UK’s only charity dedicated to supporting children, families, and adults affected by retinoblastoma, providing lifelong support, raising awareness, and funding vital research.
Children's Hospital Colorado provides specialized pediatric care for a wide range of health issues, including cancer treatment, bone and joint care, and respiratory issues, among others.
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