Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
This organization supports children with spinal muscular atrophy (SMA) by providing resources, advocacy, and facilitating research and treatment options.
RDCP:PAG0000294
The Children's Tumor Foundation is a nonprofit organization that supports patients and families affected by neurofibromatosis and schwannomatosis, focusing on patient support, awareness, and research funding.
RDCP:PAG0000299
The Children's Tumor Foundation supports patients and families affected by neurofibromatosis and schwannomatosis, focusing on patient support, awareness, and research funding.
The Children's Brain Tumor Foundation supports families affected by pediatric brain and spinal cord tumors through various programs, resources, and community-building activities.
The Children's Brittle Bone Foundation supports research and treatment for Osteogenesis Imperfecta (OI) and organizes fundraising events to assist those affected by the condition.
The Children's Cancer & Blood Foundation supports children and families affected by childhood cancer and blood diseases through clinical care, research, and training of healthcare professionals.
RDCP:PAG0000042
The Children's Cardiomyopathy Foundation supports families affected by childhood cardiomyopathy through research funding, educational resources, and community connections.
Children's Craniofacial Association supports and inspires individuals and families affected by facial differences.
The Children's Fund for Glycogen Storage Disease Research is dedicated to funding research and improving the quality of life for children affected by Glycogen Storage Disease Type 1 (GSD1). They support medical advances and community awareness to help find a cure.
The Children's Gaucher Research Fund is a charitable organization that raises funds to support research aimed at finding a cure for Type 2 and Type 3 Gaucher Disease.
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The Children’s Leukemia Research Association supports research efforts to find cures for leukemia and provides financial assistance to families facing the costs of treatment.
Children’s Liver Disease Foundation is dedicated to fighting all childhood liver diseases by providing information, emotional support, research funds, and advocacy for affected families.
The Children's Mitochondrial Disease Network supports families and professionals in raising awareness and understanding of mitochondrial disorders.
The CNS Foundation is dedicated to finding treatments and cures for children suffering from neurological disorders, providing resources and education to families and healthcare professionals.
COTA supports families with children and young adults on a transplant journey by providing fundraising assistance and family support to help remove financial barriers associated with life-saving transplants.
Chloe's Fight Rare Disease Foundation advocates for children with rare diseases, focusing on raising awareness and supporting research initiatives.
RDCP:PAG0000043
RDCP:PAG0000044
The Chordoma Foundation supports individuals affected by chordoma by providing resources, patient navigation services, and facilitating connections within the chordoma community.
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