Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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The ALS Therapy Development Institute (ALS TDI) is a nonprofit biotech organization focused on discovering and developing effective treatments for ALS, driven by the experiences of people affected by the disease.
ALS United CT provides support and advocacy for individuals living with ALS in Connecticut, offering care services, research collaboration, and community events.
ALS United Mid-Atlantic provides care services, advocacy, and support for individuals and families affected by ALS in Pennsylvania, New Jersey, and Delaware.
ALS United Rocky Mountain is dedicated to combating Amyotrophic Lateral Sclerosis (ALS) by providing comprehensive care services, supporting individuals and families affected by ALS, and funding research initiatives across Colorado, Utah, and Wyoming.
The APS Foundation of America, Inc. is dedicated to raising awareness and providing support for individuals affected by Antiphospholipid Syndrome (APS), focusing on education, research, and patient services.
RDCP:PAG0000023
The APS Type 1 Foundation supports individuals affected by Autoimmune Polyglandular Syndrome Type 1 through awareness, education, and research initiatives.
RDCP:PAG0000024
The ARRE Foundation supports families affected by ASXL-related disorders through education, research collaboration, and community-building efforts aimed at improving care and advancing treatment options.
RDCP:PAG0000249
To spread awareness of abetalipoproteinemia and related disorders, encourage research, find treatments, and advocate for patient needs.
The Academy of Nutrition and Dietetics provides information on nutrition and health, focusing on meal planning and choices to help prevent or manage health conditions.
Accord Alliance promotes comprehensive care for individuals and families affected by differences of sex development (DSD), facilitating collaboration among patients, healthcare providers, and researchers to improve health outcomes.
RDCP:PAG0000250
To motivate patients, friends, family and the medical community to join in advocacy and raising of awareness in hopes of finding the causation and cure of Achalasia.
RDCP:PAG0000002
To fund research and promote public awareness of Pompe disease (Acid Maltase Deficiency).
The Acoustic Neuroma Association provides information and support for individuals affected by acoustic neuroma (vestibular schwannoma), including resources for newly diagnosed patients and healthcare providers.
The Acoustic Neuroma Association of Canada provides support and resources for individuals affected by acoustic neuroma, including information on diagnosis, treatment, and community events.
RDCP:PAG0000251
To provide an emotional and communal support network for people touched by Acromegaly, offering medical information on surgery, medication, radiation, and post diagnosis support.
The Adenoid Cystic Carcinoma Research Foundation (ACCRF) focuses on accelerating research and developing therapies for patients with adenoid cystic carcinoma, a rare cancer affecting secretory glands.
RDCP:PAG0000252
To support individuals and caregivers affected by adrenal insufficiency, empowering them with education, resources, community building, and legislative advocacy.
The Adult Congenital Heart Association (ACHA) supports individuals with congenital heart disease by providing resources, information, and access to specialized care to improve patient outcomes.
AAIDA advocates for patients living with Primary Immunodeficiency, Secondary Immunodeficiency, and Autoimmune Diseases, focusing on awareness and research for these conditions.
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