Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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The IFOPA supports individuals with fibrodysplasia ossificans progressiva (FOP) and their families through education, advocacy, and funding research for a cure.
The International FOXG1 Foundation raises awareness and provides support for families affected by FOXG1 Syndrome, offering resources and a community for those impacted by this rare genetic condition.
The International FOXP1 Foundation supports families and individuals affected by FOXP1 syndrome, a rare genetic disorder, by sharing knowledge, encouraging research, and raising awareness.
The International FPIES Association advocates for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) by providing education, support, and promoting research to improve diagnosis and treatment options.
The International Federation Spina Bifida and Hydrocephalus advocates for the rights and health of individuals with Spina Bifida and Hydrocephalus, focusing on prevention, access to healthcare, and raising awareness.
The International Foundation for CDKL5 Research supports individuals affected by CDKL5 Deficiency Disorder (CDD) by providing resources, advocating for research, and connecting patients and families.
The International Foundation for Gastrointestinal Disorders (IFFGD) provides resources, support, and education for individuals affected by gastrointestinal disorders, focusing on research, awareness, and patient advocacy.
The International Hearing Society represents hearing healthcare professionals worldwide, providing resources, advocacy, and education to enhance the practice and profession of hearing health.
The International Hyperhidrosis Society is a global non-profit organization dedicated to improving the lives of individuals affected by hyperhidrosis, providing education, support, and resources related to excessive sweating.
The International League Against Epilepsy is a global organization dedicated to improving the lives of individuals affected by epilepsy through research, education, and advocacy.
The International Mosaic Down Syndrome Association (IMDSA) provides support, information, and research for families and individuals affected by mosaic Down syndrome, offering services such as online support groups, a toll-free hotline, and educational resources.
The International OCD Foundation supports individuals affected by Obsessive Compulsive Disorder (OCD) through research, treatment access, and community awareness initiatives.
The International Pain Foundation (iPain) supports the chronic pain community by providing education, awareness, and access to care resources, while fostering a sense of community among patients.
The International Painful Bladder Foundation is a non-profit organization that promotes knowledge and awareness of interstitial cystitis, bladder pain syndrome, and related disorders among patients and health professionals.
The International Paruresis Association (IPA) is a nonprofit organization that supports individuals suffering from paruresis, a social phobia that makes it difficult to urinate in the presence of others, by providing workshops, support groups, and resources.
IPOPI is an international non-profit organization that supports individuals with Primary Immunodeficiencies (PIDs) through awareness, early diagnosis, and care initiatives.
The IPPF supports patients and caregivers affected by pemphigus and pemphigoid through education, advocacy, and research, while also maintaining a natural history study to collect patient data for research purposes.
Children's Minnesota is dedicated to providing specialized pediatric health care and support services for children and their families, including a wide range of medical specialties and compassionate care programs.
IPWSO supports individuals with Prader-Willi syndrome and their families by providing information, resources, and advocacy to help them manage the condition and improve their quality of life.
The International Psychogeriatric Association focuses on geriatric mental health, providing education, advocacy, and resources to improve the care of older adults with mental health issues.
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