Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
The Jain Foundation is dedicated to finding a cure for dysferlinopathy, also known as LGMD2B, LGMDR2, and Miyoshi Myopathy 1, by supporting research, clinical trials, and providing resources for patients and clinicians.
RDCP:PAG0000122
Jamal's Helping Hands is a non-profit organization that provides support and resources to patients and families dealing with chronic illnesses, helping them navigate the healthcare system and improve their quality of life.
RDCP:PAG0000123
The Jansen's Foundation aims to raise awareness and support research for Jansen’s metaphyseal chondrodysplasia, a rare skeletal condition.
The Job Accommodation Network provides expert guidance on workplace accommodations, helping employers manage accommodations for individuals with disabilities.
The Joshua Frase Foundation supports research and provides resources for myotubular myopathy, including an international patient registry and various support services for families affected by the disorder.
The Joubert Syndrome & Related Disorders Foundation supports families affected by Joubert Syndrome by providing resources, emotional support, and opportunities for connection within an international community.
Julia's Wings Foundation supports families of children with life-threatening hematological diseases such as aplastic anemia, MDS, and PNH, while raising awareness and funding medical research.
Breakthrough T1D Canada is dedicated to advancing research and support for individuals living with type 1 diabetes (T1D), aiming to improve daily life and work towards a cure.
RDCP:PAG0000124
K-T Support Group provides support and resources for individuals with Klippel-Trenaunay Syndrome and related conditions, including webinars and clinical practice guidelines.
RDCP:PAG0000125
KARES Foundation advocates for individuals affected by KDM5C genetic variants, providing research, education, and support to improve their lives.
RDCP:PAG0000126
The KAT6 Foundation supports individuals and families living with KAT6A and KAT6B syndromes by funding research, providing assistive equipment, and raising awareness.
RDCP:PAG0000127
RDCP:PAG0000130
KIF1A.ORG is a patient-led nonprofit organization dedicated to accelerating research and treatment development for KIF1A-Associated Neurological Disorder (KAND), an ultra-rare and progressive neurodegenerative condition.
The KMT2C Foundation is a patient advocacy group focused on supporting individuals with KMT2C chromosomal abnormalities through clinical research and community engagement.
RDCP:PAG0000128
The KCNT1 Epilepsy Foundation supports individuals with KCNT1-related epilepsy by providing educational resources and facilitating research to find a cure for this condition.
Kennedy Krieger Institute provides specialized care and resources for children with brain disorders and injuries, focusing on their development and well-being.
RDCP:PAG0000129
The Kennedy’s Disease Association (KDA) is a non-profit organization dedicated to improving the lives of those affected by Kennedy's Disease, providing resources, support, and funding for research toward a cure.
KidneyUrology.org provides information and solutions related to various health issues, focusing on effective medicines, medical treatments, and natural supplements for conditions such as obesity, hypertension, and sexual health.
Kids With Heart provides support, education, and resources for individuals affected by congenital heart defects.
The KLS Foundation supports individuals affected by Kleine-Levin Syndrome (KLS) by raising awareness, providing resources, and funding research to find effective treatments and a cure.
Join our directory to help patients and families find you. Registration is free and takes just a few minutes.