Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
RDCP:PAG0000131
RDCP:PAG0000132
KrabbeConnect is dedicated to improving care and finding a cure for Krabbe disease through collaboration among patients, advocates, doctors, and researchers, focusing on patient-centered approaches and community support.
RDCP:PAG0000133
The LAM Foundation supports individuals facing Lymphangioleiomyomatosis (LAM), a rare disease that primarily affects women, by providing resources, community support, and driving research for better treatments and a cure.
The LGMD Awareness Foundation is a non-profit organization dedicated to raising awareness and providing resources for individuals with limb-girdle muscular dystrophy (LGMD). They focus on advocacy, education, and support for the LGMD community.
The LGMD2i Research Fund is dedicated to expediting the development of treatments and a cure for Limb Girdle Muscular Dystrophy 2I by supporting promising research projects and coordinating scientific efforts.
RDCP:PAG0000134
The Laryngeal Cleft Network supports families affected by laryngeal clefts by providing resources, information, and community connections to improve the lives of children born with this condition.
Learning Ally supports individuals with visual impairments and dyslexia by providing accessible educational resources and audiobooks.
The Learning Disabilities Association of America provides support, education, and advocacy for individuals with learning disabilities and their families, offering resources and information to help navigate challenges related to learning disabilities.
The Leiomyosarcoma Support & Direct Research Foundation (LMSDR) supports patients and caregivers affected by leiomyosarcoma (LMS) by providing information, emotional support, and facilitating research for effective treatments.
The LGS Foundation is dedicated to improving the lives of individuals impacted by Lennox-Gastaut Syndrome (LGS) through advancing research, awareness, education, and family support.
RDCP:PAG0000135
The LGS Foundation is dedicated to improving the lives of individuals impacted by Lennox-Gastaut Syndrome (LGS) through advancing research, awareness, education, and family support.
The Les Turner ALS Foundation provides comprehensive care and support for individuals affected by ALS, offering resources, support groups, and advancing research for treatments and cures.
Let Them Hear Foundation focuses on hearing education and access, training doctors and clinicians globally to improve care for individuals with hearing issues.
Let's Cure ACC is an international organization dedicated to supporting patients with Adrenal Cancer by providing resources, information, and a community for sharing experiences.
Leukaemia Care is a UK charity that supports individuals affected by leukaemia and other blood cancers by providing emotional, financial, and practical support services.
Blood Cancer United is dedicated to supporting individuals affected by blood cancer through research, advocacy, and providing free resources and support from healthcare professionals.
Leukodystrophy Australia supports individuals and families affected by leukodystrophy, providing knowledge, advocacy, and connections to improve their quality of life.
The organization focuses on Lewy Body Dementia (LBD), providing resources and support for patients, caregivers, and healthcare professionals, as well as promoting clinical trials and research studies.
RDCP:PAG0000136
The LFS Association supports individuals and families affected by Li-Fraumeni syndrome by providing information, advocacy, and resources, while also promoting research and optimal care.
Join our directory to help patients and families find you. Registration is free and takes just a few minutes.