Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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RDCP:PAG0000159
Myhre Syndrome Foundation is a patient advocacy organization dedicated to providing hope and improving the lives of those impacted by Myhre syndrome, fostering collaboration to advance research and support the community.
RDCP:PAG0000160
The Myocarditis Foundation raises awareness and funds research for myocarditis, a condition that causes inflammation of the heart, affecting thousands each year and leading to sudden death.
Myositis UK is a national charity that provides information and support to individuals affected by myositis and funds research to enhance diagnosis and treatment.
Hospital for Special Surgery specializes in orthopedic and rheumatology care, providing services such as physical therapy and patient management through their MyHSS platform.
RDCP:PAG0000161
Myositis Support and Understanding (MSU) is a nonprofit organization dedicated to supporting patients and caregivers affected by myositis, a group of rare immune-mediated muscle diseases, through education, advocacy, and financial assistance programs.
RDCP:PAG0000162
The Myotonic Dystrophy Foundation supports individuals affected by myotonic dystrophy through advocacy, research funding, and educational resources.
Myotubular Trust supports individuals affected by Myotubular and Centronuclear Myopathy by funding research for treatments and providing resources and shared experiences to empower patients and their families.
RDCP:PAG0000164
The NBIA Disorders Association supports families affected by Neurodegeneration with Brain Iron Accumulation (NBIA) by providing education, resources, and funding for research.
The NDI Foundation supports education, research, treatment, and the search for a cure for Nephrogenic Diabetes Insipidus, serving patients, families, and healthcare providers.
The NEC Society is dedicated to understanding and preventing necrotizing enterocolitis (NEC) through research, education, and advocacy, supporting families and clinicians affected by this neonatal disease.
The NEHI Research Foundation works to improve the diagnostic process, find treatments, and ultimately cure all forms of Children’s Interstitial Lung Disease through research support and financial assistance to affected families.
The Neuroendocrine Tumor Research Foundation is dedicated to advancing research and providing education and support for patients with neuroendocrine cancer.
RDCP:PAG0000168
NF2 BioSolutions is a non-profit organization dedicated to finding a cure or preventative treatment for Neurofibromatosis Type 2 (NF2) by supporting and advancing biomedical technologies, including gene therapy and immunotherapy.
The NICER Foundation provides financial assistance to individuals with narcolepsy facing sudden financial crises and works to improve the lives of people with narcolepsy through advocacy and education.
The University of Maryland, Baltimore is dedicated to excellence in education, research, clinical care, and service, focusing on various health-related fields and community engagement.
The National Heart, Lung, and Blood Institute (NHLBI) leads research, training, and education programs focused on the prevention and treatment of heart, lung, and blood disorders.
The National Center for Complementary and Integrative Health (NCCIH) conducts and supports research and provides information about complementary health products and practices in the context of whole person health.
The National Institute of Allergy and Infectious Diseases (NIAID) conducts research to advance the understanding, diagnosis, treatment, and prevention of infectious, immunologic, and allergic diseases.
The National Institute on Drug Abuse (NIDA) supports scientific research on drug use and addiction, focusing on prevention, treatment, and harm reduction strategies.
RDCP:PAG0000169
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