Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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Organizations keep their identity even when websites change.
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The National Initiative for Cockayne Syndrome (NICS) is dedicated to improving the quality of life for children and families affected by Cockayne Syndrome through medical education, early diagnosis, and research.
The National Institute of Environmental Health Sciences (NIEHS) conducts research on how environmental factors affect human health and aims to improve public health through scientific knowledge and outreach.
The National Keratoconus Foundation supports individuals affected by keratoconus through education, advocacy, and research initiatives.
The National Kidney Foundation supports patients and families living with kidney disease by providing resources, advocating for health policies, and funding research for better treatment and transplant access.
The National MALS Foundation is a nonprofit organization dedicated to providing hope and support to those suffering from Median Arcuate Ligament Syndrome (MALS) through advocacy, awareness, education, and research.
The National MPS Society supports families affected by MPS and ML by providing resources, funding research, and advocating for change.
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The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
NMDP (formerly Be The Match) is a nonprofit organization that saves lives through cell therapy, focusing on treating blood cancers and disorders by connecting patients with blood stem cell donors.
The National Mental Health Consumers’ Self-Help Clearinghouse is a peer-run resource center that supports individuals with mental health conditions by providing advocacy, self-help resources, and community inclusion services.
The National Niemann-Pick disease Foundation, Inc. (NNPDF) is a non-profit organization dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration, and research.
The National Eye Institute is dedicated to eliminating vision loss and improving quality of life through vision research, funding research, and providing information about eye health and conditions.
NORD supports individuals with rare diseases by providing patient assistance programs, disease education, and advocacy for policy changes to improve their health and well-being.
The NODCC supports individuals and families affected by disorders of the corpus callosum (DCC) by providing resources, raising awareness, and fostering a supportive community.
NPKUA is dedicated to supporting individuals affected by a specific disease, focusing on community engagement and research efforts.
The Parkinson's Foundation supports individuals affected by Parkinson's disease through resources, research initiatives, and community engagement to improve care and advance towards a cure.
The National Perinatal Association promotes evidence-based practices in perinatal care, advocating for pregnant people, infants, and families through collaboration, education, and community engagement.
The Prune Belly Syndrome Network (PBSN) is a nonprofit organization dedicated to supporting individuals born with prune belly syndrome, providing education, advocacy, and resources for affected families.
The National Psoriasis Foundation advocates for individuals affected by psoriatic disease, providing resources, support, and funding for research aimed at finding a cure.
The National Rosacea Society is a non-profit organization dedicated to improving the lives of people with rosacea by raising awareness, providing public health information, and supporting medical research on this common skin disorder.
The National Scleroderma Foundation supports individuals affected by scleroderma through education, advocacy, and research initiatives aimed at improving treatment and finding a cure.
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