Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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Organizations keep their identity even when websites change.
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The National Scoliosis Foundation is a patient-led nonprofit organization dedicated to improving the lives of individuals affected by scoliosis through advocacy, education, and support services.
HIP Housing is a non-profit organization that helps create housing solutions for individuals and families in San Mateo County.
The National Shingles Foundation focuses on raising awareness about shingles and promoting the Shingrix vaccine for prevention, particularly among adults aged 50 and older.
The Sleep Foundation is dedicated to helping individuals improve their sleep through product reviews, sleep tests, and educational resources related to sleep disorders such as sleep apnea and insomnia.
The National Society for Phenylketonuria (NSPKU) is a UK charity dedicated to improving the lives of individuals living with phenylketonuria (PKU), providing support, information, and organizing conferences for affected families.
The National Society of Genetic Counselors advocates for genetic counselors, promoting their roles and ensuring equitable access to genomic healthcare through collaboration, education, and research.
Dysphonia International is a patient advocacy organization that supports individuals with voice disorders, including Spasmodic Dysphonia, by providing resources, research opportunities, and community connections.
The Spinal Cord Injury Resource Center provides resources and services to enhance the health, independence, and quality of life for individuals with spinal cord injuries or diseases.
The National Stem Cell Foundation supports research and education related to stem cells and advocates for children with rare diseases, aiming to speed research to cures and increase the donor pool for bone marrow transplants.
The American Stroke Association provides resources and support for stroke patients and caregivers, focusing on prevention, recovery, and education about stroke warning signs.
The National Stuttering Association supports people who stutter and their families by providing resources, support groups, and educational tools to foster a more accepting and understanding environment.
The National Tay-Sachs & Allied Diseases Association (NTSAD) supports families and advances research for Tay-Sachs, Canavan, GM1, and Sandhoff diseases through community engagement and collaboration.
The National Urea Cycle Disorders Foundation is dedicated to saving and improving the lives of individuals affected by urea cycle disorders through advocacy, research, and support services.
The National Vulvodynia Association is dedicated to improving the health and quality of life for women suffering from chronic vulvar pain, providing educational materials, support services, and resources for both patients and healthcare providers.
HealthyWomen is a nonprofit organization focused on educating and empowering women to make informed decisions about their health care, addressing various women's health issues.
RDCP:PAG0000165
NephCure is dedicated to supporting individuals affected by rare kidney diseases, such as FSGS and IgA nephropathy, by providing resources, advocacy, and funding for research aimed at improving treatments and finding a cure.
Neuroacanthocytosis Advocacy USA, Inc. raises awareness of neuroacanthocytosis disorders, supports patients and caregivers, and fosters research into the causes, treatment, and cure of these diseases.
Neurofibromatosis Midwest is dedicated to improving the lives of individuals affected by neurofibromatosis through education, support, and funding research for treatments and a cure.
RDCP:PAG0000166
The NF Network is dedicated to serving the neurofibromatosis community by pursuing treatments and a cure for the disease.
Neurofibromatosis Northeast supports patients affected by neurofibromatosis and allied disorders through advocacy, research funding, and community resources.
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