Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
The PCDH19 Alliance is dedicated to improving the lives of those affected by PCDH19 epilepsy through research, support, and community connection.
RDCP:PAG0000178
The PFIC Network supports individuals affected by Progressive Familial Intrahepatic Cholestasis (PFIC) by providing educational resources, direct support, and facilitating a patient registry to improve understanding and treatment of the disease.
PHA Europe is a patient advocacy organization focused on improving awareness and quality of life for individuals affected by pulmonary hypertension (PH) through education, advocacy, and collaborative programs.
RDCP:PAG0000179
The PHACE Syndrome Community is a nonprofit organization that supports individuals and families affected by PHACE Syndrome, providing resources and connections for those impacted by this rare disease.
phaware.global raises awareness and supports research for pulmonary hypertension (PH), a rare and life-threatening disease affecting lung arteries.
The PHG Foundation focuses on integrating genomics into healthcare and addressing the implications of technological advancements in diagnosis and population health.
This organization provides support, information, and training for families of children and adults with disabilities, offering services such as consultations, support groups, and resources for navigating educational and developmental challenges.
RDCP:PAG0000183
The PKD Foundation is dedicated to finding treatments and a cure for polycystic kidney disease (PKD) while improving the lives of those affected by the disease through research, advocacy, and education.
This organization empowers people with disabilities through education, social innovation, and leadership initiatives, focusing on improving their quality of life.
The PMD Foundation serves those affected by PMD and PMLD through education, research, service, and advocacy.
The PMG Awareness Organization provides support and resources for families affected by Polymicrogyria, fostering a community for education and assistance.
RDCP:PAG0000187
PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS.
PSC Partners Seeking a Cure is dedicated to driving research for treatments and a cure for primary sclerosing cholangitis (PSC) while providing education and support for patients and caregivers affected by this rare disease.
RDCP:PAG0000189
The PTEN Foundation supports individuals affected by PTEN Hamartoma Tumor Syndrome (PHTS) by funding research, providing education, and raising awareness about the condition.
PTEN UK & Ireland is a patient advocacy organization that supports individuals affected by PTEN Hamartoma Tumour Syndrome (PHTS) through healthcare advocacy, counseling services, and community grants.
PTEN World is a support and advocacy group for individuals and families affected by PTEN hamartoma tumor syndrome and related conditions, providing a platform for connection and awareness.
PVNH Support & Awareness is an international patient organization that supports families affected by Periventricular Nodular Heterotopia (PVNH), Grey Matter Heterotopia (GMH), and Subcortical Band Heterotopia (SBH) by providing education, resources, and advocacy.
PWN4PWN is a patient advocacy organization focused on supporting individuals with narcolepsy and idiopathic hypersomnia (IH) through resources like wellness programs, career workshops, and community support.
PXE International is an organization that supports individuals affected by Pseudoxanthoma Elasticum (PXE) through research and community engagement.
This organization provides personalized chronic pain management solutions, including therapies like spinal cord stimulation and radiofrequency ablation, to help individuals manage various types of chronic pain.
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