Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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Project Alive is dedicated to finding a cure for Hunter syndrome, providing resources and support for affected individuals, parents, and healthcare providers.
Project FAVA supports the Fibro-Adipose Vascular Anomaly (FAVA) community through outreach, education, and connections to researchers and medical organizations.
Project Sleep is a non-profit organization dedicated to raising awareness about sleep health, sleep equity, and sleep disorders.
Project Sunshine is a nonprofit organization that delivers the healing power of play to children with medical needs through trained volunteers, reaching over 250,000 children and families annually.
The Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.
RDCP:PAG0000284
PAPAA is a UK charity that provides support for individuals affected by psoriasis and psoriatic arthritis through education, advocacy, and access to expert information.
RDCP:PAG0000190
The PAP Foundation is a non-profit patient advocacy organization dedicated to finding a cure and improving the lives of those affected by Pulmonary Alveolar Proteinosis (PAP) through research promotion and support services.
The Pulmonary Hypertension Association (PHA) is dedicated to supporting individuals affected by pulmonary hypertension through education, resources, and community connections.
RDCP:PAG0000191
RDCP:PAG0000192
The Pyruvate Kinase Deficiency International Alliance enhances the quality of life for patients with PK deficiency and their families by providing awareness, education, and advocacy.
Raising Our Celiac Kids (ROCK) is a program by the National Celiac Association that provides resources and support for children and teens with celiac disease and their families, helping them navigate dietary and social challenges.
Disability Rights UK is a leading organization advocating for the rights and accessibility of Disabled people in the UK, working to influence policy and provide resources for better quality of life and economic opportunities.
RDCP:PAG0000194
The RASopathies Network advocates for individuals with RASopathy syndromes, providing resources, support, and opportunities for research participation.
RESOLVE: The National Infertility Association provides support and advocacy for individuals facing infertility, working to improve access to infertility treatments and insurance coverage.
The Raiden Science Foundation is dedicated to advancing treatment for UBA5 Disorder, a severe neurodevelopmental condition affecting children, through innovative research and gene therapy.
The Ramsay Hunt Syndrome Foundation supports individuals living with Ramsay Hunt syndrome through education, advocacy, and resources to improve care and understanding of the condition.
Rare Birds Foundation supports families affected by Adenylosuccinate Lyase Deficiency Disorder (ADSLD) and related purine disorders.
The Rare Cancer Research Foundation is dedicated to curing rare cancers through patient-powered research, facilitating effective research, and accelerating the deployment of promising therapies.
RDCP:PAG0000301
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