Rare Disease UK is a campaign by Genetic Alliance UK that raises awareness and advocates for individuals affected by rare diseases, providing support and information to the rare disease community.

Sjældne Diagnoser is an organization that represents 55 associations for individuals affected by rare diseases and disabilities, providing support and advocacy to improve their conditions.

Rare Disorders New Zealand advocates for individuals and their families living with rare disorders, aiming to improve access to health, disability, and education services for the 300,000 New Zealanders affected.

Rare Genomics Institute is a non-profit organization dedicated to bridging the healthcare gap for undiagnosed rare disease patients through advocacy, genomic sequencing, and partnerships with researchers and biomedical technology.

Rare Trait Hope Fund is dedicated to finding a treatment for Aspartylglucosaminuria (AGU), a rare and fatal disease, by funding research and clinical trials while encouraging donations to support their efforts.

Raregivers provides emotional support to families living with rare, chronic, and complex diseases, offering workshops and resources to help caregivers manage their challenges.

The Raymond A. Wood Foundation is a patient advocacy organization focused on improving the quality of life for survivors of craniopharyngioma and hypothalamic-pituitary brain tumors by providing access to education, technology, and evolving treatments.

The Raynaud's Association is a non-profit organization that provides support and education for individuals suffering from Raynaud's phenomenon, a condition characterized by exaggerated sensitivity to cold temperatures.

Reach is a volunteer-led charity that supports families and young people with upper limb differences, providing resources and a community for connection and learning.

The Recurrent Pregnancy Loss Association is dedicated to eliminating recurrent pregnancy loss through research, support, and awareness for those affected by miscarriage and fertility challenges.

The Recurrent Respiratory Papillomatosis Foundation advocates for patients with RRP by promoting non-surgical treatment options, providing resources, and fostering community support.

RSDSA provides support, education, and advocacy for individuals affected by Complex Regional Pain Syndrome (CRPS), while also driving research for better treatments and a cure.

The Relapsing Polychondritis (RP) Foundation supports patients with Relapsing Polychondritis by facilitating awareness, education, and research to improve their quality of life and advance a cure for this autoimmune disease.

Remember The Girls advocates for females impacted by X-linked conditions, providing support, resources, and family planning options.

Research!America is a patient advocacy organization that promotes science, discovery, and innovation to achieve better health for all.

The Restricted Growth Association UK advocates for individuals with dwarfism, providing resources, support, and opportunities for community engagement.

Retina International is dedicated to supporting individuals and families affected by retinal degenerative diseases through advocacy, research, and community engagement.

Groups.io provides a platform for online communities to manage email discussions and collaboration tools, focusing on privacy and user-friendly features.

The Rett Syndrome Research Trust (RSRT) is dedicated to curing Rett syndrome by funding genetic research and developing targeted genetic medicines.