Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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MPS Austria is dedicated to supporting children with Mucopolysaccharidoses (MPS) and their families by providing emotional, practical, and financial assistance, as well as raising awareness about this rare disease.
The Society for the Study of Reproduction is a leading organization focused on advancing reproductive biology in biomedicine and agriculture, providing resources and support for researchers, clinicians, educators, and students.
RDCP:PAG0000214
Soft Bones is a patient advocacy organization focused on hypophosphatasia (HPP), providing education, community support, and funding for research to improve understanding and treatment of this rare genetic disorder.
RDCP:PAG0000262
The Sotos Syndrome Support Association (SSSA) provides social support for families and professionals affected by Sotos syndrome, facilitating idea exchange and coping strategies.
RDCP:PAG0000279
The Southeastern Regional Genetics Group (SERGG) is a non-profit organization focused on improving genetic services and resources in the southeastern United States, addressing inequities and enhancing communication among providers and consumers.
SparkHope is dedicated to helping people with rare diseases and their loved ones create a happy, meaningful, and hopeful life through community building and mental health support.
The Spastic Paraplegia Foundation is dedicated to advancing research and finding cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis, while providing education and support for those affected by these neurological disorders.
RDCP:PAG0000215
The Spina Bifida and Hydrocephalus Association of Canada advocates for individuals with spina bifida and hydrocephalus, providing support through programs like bursaries and research funding.
RDCP:PAG0000216
The Spinal CSF Leak Foundation aims to reduce the suffering of individuals affected by intracranial hypotension or spinal cerebrospinal fluid leaks by providing information, support, and resources for diagnosis and treatment.
The Spinal Muscular Atrophy Foundation aims to accelerate the development of treatments for Spinal Muscular Atrophy, a leading genetic cause of death in young children.
This organization provides information and support for various spinal conditions, including whiplash, spinal muscular atrophy, and back pain management.
The Spondylitis Association of America supports individuals affected by spondyloarthritis by providing educational resources, community connections, and advocacy for better diagnosis and treatment options.
Starlight Children's Foundation provides programs that bring happiness and comfort to seriously ill and hospitalized children, including toy deliveries, gaming stations, and themed hospital gowns.
RDCP:PAG0000218
Stevens-Johnson Syndrome Canada provides support for survivors, families, and caregivers affected by Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) through advocacy, awareness, and education.
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RDCP:PAG0000219
Pierre Robin Europe is a not-for-profit organization that supports patients with Pierre Robin Sequence by providing information, advocacy, and resources to improve access to care and raise awareness about the disease.
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