Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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The UGDH Foundation is dedicated to supporting families affected by Jamuar syndrome, a rare genetic disorder, by facilitating scientific collaboration to improve treatments and find a cure.
The Visual Snow Initiative is a nonprofit organization dedicated to raising awareness, providing education, and supporting research for Visual Snow Syndrome, a neurological condition that affects vision and quality of life.
The Wiedemann-Steiner Syndrome (WSS) Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS, a rare genetic disorder.
The Wolverine Foundation is dedicated to advancing research and treatment for the MAPK8IP3 genetic mutation and related central nervous system disorders through educational initiatives and support for affected individuals.
Think First National Injury Prevention Foundation is dedicated to preventing brain, spinal cord, and other injuries through education, research, and advocacy, focusing on safety measures to reduce risks associated with traumatic injuries.
RDCP:PAG0000300
Empowering those living with genetic conditions and their providers.
RDCP:PAG0000291
Empowering those living with genetic conditions and their providers.
Thisbe & Noah promotes research, awareness, and support for children with neurological diseases.
Through the Looking Glass provides services and support for families with disabilities, focusing on adaptive baby care and early childhood education for children with disabilities.
ThyCa is a nonprofit organization that supports and educates the global thyroid cancer community, providing resources and services for patients, caregivers, and healthcare professionals.
The Timothy Syndrome Alliance supports individuals and families affected by CACNA1C-Related Disorders, including Timothy Syndrome, by building a knowledge hub, improving diagnosis, and driving research efforts.
Together for Short Lives supports families caring for seriously ill children by providing emotional, practical, and financial assistance, as well as advocating for improved palliative care services.
The Tom Wahlig Stiftung supports research and provides advice for individuals affected by Hereditary Spastic Paraplegia (HSP), a rare and incurable genetic disease that often begins in childhood and progressively worsens.
Two Rhythms is an accessible arts charity that provides music and movement therapy programs for people with profound disabilities, promoting health and wellbeing through creative expression.
The Tourette Association of America (TAA) is dedicated to raising awareness, advancing research, and providing support to individuals and families affected by Tourette Syndrome and Tic Disorders.
Tourette Canada is dedicated to improving the lives of Canadians affected by Tourette Syndrome and associated conditions through education, advocacy, and community outreach.
TOFS is a charity that offers lifelong support for individuals born with Oesophageal Atresia (OA) and Tracheoesophageal Fistula (TOF), providing information for parents, carers, and healthcare professionals.
TRIO Transplant Recipients International Organization connects the pre and post transplant community, empowering patients and their families facing the need for an organ transplant and living life afterwards.
Triage Cancer provides free education on the legal and practical issues that arise after a cancer diagnosis, offering resources, events, and materials to support individuals affected by cancer.
The Tuberous Sclerosis Association supports individuals and families affected by Tuberous Sclerosis Complex (TSC) through dedicated advisers and community engagement.
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