Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
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The Turner Syndrome Foundation is a non-profit organization that provides advocacy, education, and support for individuals affected by Turner syndrome, facilitating research initiatives and enhancing medical care.
RDCP:PAG0000233
The Turner Syndrome Society of the United States provides support and resources for individuals with Turner syndrome, including educational materials, community connections, and advocacy for telehealth access.
This organization focuses on raising awareness and providing support for Turner Syndrome, a genetic condition affecting females that can impact physical development and reproductive health.
The Turner Syndrome Support Society provides support and information for women and girls with Turner Syndrome, focusing on their unique needs and offering resources such as publications, events, and advice.
The TTTS Foundation is dedicated to providing educational, emotional, and financial support to families affected by Twin to Twin Transfusion Syndrome (TTTS) and its related conditions, including TAPS, SIUGR, and TRAP.
RDCP:PAG0000234
The Tyrosinemia Society provides information and support for individuals affected by Tyrosinemia, including resources for patients, parents, and healthcare providers.
U.R. Our Hope is a non-profit organization that assists individuals and families affected by undiagnosed and rare disorders through education, advocacy, and support.
The UCSF Edward and Pearl Fein Memory and Aging Center provides expert diagnosis and care for individuals with memory and thinking issues, focusing on conditions like dementia and Alzheimer's disease.
The US Hereditary Angioedema Association is a non-profit organization that advocates for individuals with Hereditary Angioedema (HAE) and provides resources, education, and support to improve their quality of life.
ZERO Prostate Cancer is dedicated to supporting individuals affected by prostate cancer through various support groups and resources, aiming to empower patients, partners, and caregivers in their journey.
This organization provides educational resources about cancer immunotherapy, including information on available treatments and the immune system's role in cancer.
The UDNF supports families with undiagnosed or ultra-rare conditions by providing resources for diagnosis, research, treatment, and community support.
United Cerebral Palsy advocates for people with disabilities, providing resources, education, and support to promote inclusion and independence.
The United Leukodystrophy Foundation (ULF) is a non-profit organization dedicated to supporting the leukodystrophy community by providing disease information, medical referrals, and funding research to improve patient quality of life.
United MSD Foundation is a nonprofit organization dedicated to raising awareness and funding research for Multiple Sulfatase Deficiency (MSD), while providing support and resources to affected families.
UMDF supports individuals affected by mitochondrial diseases through education, research, and advocacy, while also maintaining a patient registry and providing resources for families.
United Spinal Association empowers and advocates for people with spinal cord injuries/disorders and all wheelchair users to achieve their highest quality of life through various support services and resources.
The U.S. Access Board is a federal agency that advances accessible design standards and guidelines in alignment with the Americans with Disabilities Act and other federal laws.
The United States Adult Cystic Fibrosis Association (USACFA) provides support, information, and encouragement to adults with cystic fibrosis through community outreach programs and the publication of the CF Roundtable magazine.
United Way of Greater Houston provides financial stability services, early childhood and youth development programs, and health care programs to help families achieve financial security and build sustainable futures.
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