A type of benign brain tumor that begins in the Schwann cells, which produce the myelin that protects the acoustic nerve - the nerve of hearing.
Comprehensive, easy-to-understand information about this condition
How we create this content →Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
The limited documentation surrounding acoustic neuroma is largely due to its rarity and the challenges in conducting systematic studies. As this condition affects a relatively small population, comprehensive clinical data and phenotype characterization have not been extensively pursued. This can lead to feelings of frustration among patients and families seeking more information.
To navigate your journey with acoustic neuroma, consider consulting a neuro-oncologist or an otolaryngologist specializing in skull base tumors. These specialists can provide tailored management strategies based on your specific situation. You can also connect with patient organizations such as the Acoustic Neuroma Association (https://anausa.org) and its Canadian counterpart (https://anac.ca) for support and resources. Participating in clinical trials may also be an option to explore, as they can provide access to cutting-edge treatments and contribute to ongoing research.
Currently, there are 30 active clinical trials focusing on acoustic neuroma, which explore various treatment options and management strategies. You can find more information about these trials by visiting ClinicalTrials.gov and searching for 'acoustic neuroma'. This active research landscape offers hope for better understanding and treatment of the condition.
Actionable guidance for navigating care for acoustic neuroma
To navigate your journey with acoustic neuroma, consider consulting a neuro-oncologist or an otolaryngologist specializing in skull base tumors. These specialists can provide tailored management strategies based on your specific situation. You can also connect with patient organizations such as the Acoustic Neuroma Association (https://anausa.org) and its Canadian counterpart (https://anac.ca) for support and resources. Participating in clinical trials may also be an option to explore, as they can provide access to cutting-edge treatments and contribute to ongoing research.
Consider asking your healthcare providers these condition-specific questions
Connect with organizations supporting the acoustic neuroma community
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Feb 1, 2026
Patient Advocacy Groups (PAGs) provide support, resources, and community for patients and caregivers.
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.