central nervous system endodermal sinus tumor | Kisho | Kisho

central nervous system endodermal sinus tumor

Rare Disease

MONDO:0003401

Also known as:

central nervous system yolk Sac tumorcentral nervous system yolk Sac tumourcentral nervous system yolk sac tumor

A yolk sac tumor that arises from the central nervous system and occurs during childhood.

Genes

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Clinical Trials

1 active

Newborn Screening

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Patient Groups

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Patient-Friendly Information

Comprehensive, easy-to-understand information about this condition

How we create this content →

Feb 7, 2026

Verified

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Clinical Trials

Research studies investigating treatments and therapies for this condition.

Active Trials

Total Trials

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Data from ClinicalTrials.gov Jan 8, 2026

Clinical Trials

Research studies investigating treatments and therapies for this condition.

Active Trials

Total Trials

Filter trials on ClinicalTrials.gov:

View Recruiting Trials View All Trials

Data from ClinicalTrials.gov Jan 8, 2026

Overview

Central nervous system endodermal sinus tumor is an extremely rare condition. Because few cases have been documented, detailed clinical information is limited.

Symptoms & Signs

This tumor is a type of yolk sac tumor that arises from the central nervous system, primarily affecting children. There are no known associated genes, inheritance patterns, or documented symptoms available at this time. Additionally, there are currently no orphan drug designations under investigation.

Prognosis & Outlook

Patients and caregivers are encouraged to seek consultation with specialists experienced in treating rare tumors. Genetic counseling may be beneficial, particularly if there are concerns about hereditary factors. Connecting with rare disease registries and online patient communities can provide additional support and resources.

Quick Resources

Helpful links for rare disease information and support

GARD (Genetic and Rare Diseases Information Center)NORD (National Organization for Rare Disorders)

General Questions to Consider

Questions that may be helpful when speaking with your healthcare team

•Are there specialists or centers of excellence with experience in this condition?
•Is there a patient registry I could participate in?
•What clinical trials might be available for this condition?
•Are there patient advocacy groups I should connect with?

Clinical

Limited Clinical Data

Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.

Treatment

Clinical Trials

Research studies investigating treatments and therapies for this condition.

Active Trials

Total Trials

Filter trials on ClinicalTrials.gov:

View Recruiting Trials View All Trials

Data from ClinicalTrials.gov Jan 8, 2026

Support

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AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.

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central nervous system endodermal sinus tumor

Patient-Friendly Information

Clinical Trials

Clinical Trials

Overview

Overview

Symptoms & Signs

Prognosis & Outlook

Quick Resources

General Questions to Consider

Clinical

Limited Clinical Data

Treatment

Clinical Trials

Support

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