Comprehensive, easy-to-understand information about this condition
How we create this content →The limited documentation surrounding acute radiation syndrome is largely due to its extreme rarity and the complexity of its clinical presentation. With fewer than 10 individuals per million affected, systematic studies are challenging to conduct. Additionally, the clinical features can overlap with other conditions, making characterization difficult. This underscores the need for ongoing research and clinical observation.
To navigate acute radiation syndrome, consider consulting with a specialist in radiation oncology or a hematologist with experience in managing radiation-induced conditions. While there are no specific patient organizations currently identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Participating in clinical trials may also offer access to emerging treatments and contribute to the understanding of this condition.
There are currently 26 active clinical trials investigating various aspects of acute radiation syndrome. Research is focused on potential treatments, including several orphan-designated drugs such as Diseleno Dipropionic Acid and a long-acting interleukin-11 analog. For more information on these trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=acute%20radiation%20syndrome.
Actionable guidance for navigating care for acute radiation syndrome
To navigate acute radiation syndrome, consider consulting with a specialist in radiation oncology or a hematologist with experience in managing radiation-induced conditions. While there are no specific patient organizations currently identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Participating in clinical trials may also offer access to emerging treatments and contribute to the understanding of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The limited documentation surrounding acute radiation syndrome is largely due to its extreme rarity and the complexity of its clinical presentation. With fewer than 10 individuals per million affected, systematic studies are challenging to conduct. Additionally, the clinical features can overlap with other conditions, making characterization difficult. This underscores the need for ongoing research and clinical observation.
To navigate acute radiation syndrome, consider consulting with a specialist in radiation oncology or a hematologist with experience in managing radiation-induced conditions. While there are no specific patient organizations currently identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Participating in clinical trials may also offer access to emerging treatments and contribute to the understanding of this condition.
There are currently 26 active clinical trials investigating various aspects of acute radiation syndrome. Research is focused on potential treatments, including several orphan-designated drugs such as Diseleno Dipropionic Acid and a long-acting interleukin-11 analog. For more information on these trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=acute%20radiation%20syndrome.
Actionable guidance for navigating care for acute radiation syndrome
To navigate acute radiation syndrome, consider consulting with a specialist in radiation oncology or a hematologist with experience in managing radiation-induced conditions. While there are no specific patient organizations currently identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Participating in clinical trials may also offer access to emerging treatments and contribute to the understanding of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
The limited documentation surrounding acute radiation syndrome is largely due to its extreme rarity and the complexity of its clinical presentation. With fewer than 10 individuals per million affected, systematic studies are challenging to conduct. Additionally, the clinical features can overlap with other conditions, making characterization difficult. This underscores the need for ongoing research and clinical observation.
To navigate acute radiation syndrome, consider consulting with a specialist in radiation oncology or a hematologist with experience in managing radiation-induced conditions. While there are no specific patient organizations currently identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Participating in clinical trials may also offer access to emerging treatments and contribute to the understanding of this condition.
There are currently 26 active clinical trials investigating various aspects of acute radiation syndrome. Research is focused on potential treatments, including several orphan-designated drugs such as Diseleno Dipropionic Acid and a long-acting interleukin-11 analog. For more information on these trials, you can visit ClinicalTrials.gov at https://clinicaltrials.gov/search?cond=acute%20radiation%20syndrome.
Actionable guidance for navigating care for acute radiation syndrome
To navigate acute radiation syndrome, consider consulting with a specialist in radiation oncology or a hematologist with experience in managing radiation-induced conditions. While there are no specific patient organizations currently identified, resources like the Genetic and Rare Diseases Information Center (GARD) at rarediseases.info.nih.gov can provide valuable information. Participating in clinical trials may also offer access to emerging treatments and contribute to the understanding of this condition.
Consider asking your healthcare providers these condition-specific questions
Helpful links for rare disease information and support
Clinical profile data for this condition is not yet available. Phenotype information may still be loading below.
Research studies investigating treatments and therapies for this condition.
Active Trials
Total Trials
Data from ClinicalTrials.gov Jan 30, 2026
Consider asking your healthcare providers these condition-specific questions
European rare disease database
Genetic and Rare Diseases Info Center
AI-Generated Content: This summary was generated using AI. Content has been fact-checked. Always consult with qualified healthcare providers for medical guidance.
Kisho delivers this disease record via API, including phenotypes (HPO), genes, orphan drug designations, screening status, and PAG mapping, with version history and governance.
Organizations with orphan designations or approved therapies for this disease
Advanced Innovative Partners, Inc.
Other
BioIncept, LLC dba Prince Biotech, LLC
Other
Bolder BioTechnology, Inc.
Other
Cellphire, Inc.
Other
Chrysalis BioTherapeutics, Inc.
Other
Enzychem Lifesciences Corporation
Other
EpicentRx, Inc.
Other
Humanetics Corporation
Other
Myelo Therapeutics GmbH
Other
NeoImmuneTech, Inc.
Other
Neumedicines, Inc.
Other
Onconova Therapeutics, Inc.
Other
Pluri Biotech Ltd.
Other
RNR BioMedical Inc.
Other
Soligenix, Inc.
Other
WORPHMED Srl
Other