Connect with patient groups who understand your journey
Connect with organizations that understand your journey.
Each group is verified to help you connect with confidence.
Organizations keep their identity even when websites change.
Search by your condition, organization name, or location
The TED Community Organization is dedicated to supporting individuals affected by Thyroid Eye Disease (TED) and Graves' Disease by providing trusted information, emotional support, and community connection.
RDCP:PAG0000231
The TMJ Association is a patient advocacy organization dedicated to improving the understanding and treatment of Temporomandibular Disorders (TMD) through education, research, and support for patients.
The TRPM3 Foundation focuses on empowering individuals affected by TRPM3-related disorders through research, advocacy, and community support.
RDCP:PAG0000232
The TSC Alliance is dedicated to improving the quality of life for individuals affected by tuberous sclerosis complex (TSC) through research, advocacy, and support services.
RDCP:PAG0000225
TCOYD educates and motivates people with diabetes to take an active role in managing their condition and provides continuing education for healthcare professionals.
RDCP:PAG0000283
RDCP:PAG0000227
TargetCancer Foundation advocates for individuals diagnosed with rare cancers by advancing research and connecting the rare cancer community to improve treatment options.
The Tarlov Cyst Disease Foundation promotes research and education about Tarlov cysts, providing support and resources for patients and advocating for awareness within the medical community.
RDCP:PAG0000229
The organization supports families affected by Tatton Brown Rahman Syndrome (TBRS) by advancing research, providing resources, and fostering a community for patients, families, and clinicians.
Team PHenomenal Hope is dedicated to improving the lives of patients with pulmonary hypertension through various initiatives, including research awards and community support.
RDCP:PAG0000230
Team Telomere is dedicated to supporting individuals affected by Telomere Biology Disorders through information, advocacy, and community resources, while also advancing research for effective treatments and cures.
TDI promotes equal access in telecommunications and media for individuals who are deaf, hard of hearing, late deafened, or deaf blind, providing education, technical assistance, and advocacy for accessibility issues.
The Texas Neurofibromatosis Foundation is a nonprofit organization dedicated to supporting individuals affected by neurofibromatosis through education, advocacy, and funding research for treatment and prevention.
The organization focuses on supporting patients with thalassaemia and other rare anemias by providing resources, education, and advocacy for better healthcare access.
The AADC Research Trust is an international patient advocacy organization supporting children with Aromatic Amino Acid Decarboxylase deficiency (AADCd) by driving research, advancing treatment strategies, and providing resources for families.
The AIP BIPOC Network is a nonprofit organization that supports individuals and families navigating autoimmune and chronic illness, focusing on culturally grounded and accessible care for BIPOC communities.
The Aarskog Foundation is a Scottish charity that supports children and individuals diagnosed with Aarskog Syndrome by providing resources for healthcare, education, and research.
The Allo Hope Foundation empowers, educates, and supports patients affected by alloimmunization and Hemolytic Disease of the Fetus and Newborn (HDFN) through resources, advocacy, and community support.
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